{"id":96131,"global_id":"ibecbarcelona.eu\/ca\/?id=96131","global_id_lineage":["ibecbarcelona.eu\/ca\/?id=96131"],"author":"4","status":"publish","date":"2017-11-21 17:06:06","date_utc":"2017-11-21 16:06:06","modified":"2017-11-21 17:06:06","modified_utc":"2017-11-21 16:06:06","url":"https:\/\/ibecbarcelona.eu\/ca\/event\/faster-future-2017-musculo-en-un-chip-para-combatir-la-distrofia-muscular-2\/","rest_url":"https:\/\/ibecbarcelona.eu\/ca\/wp-json\/tribe\/events\/v1\/events\/96131","title":"Faster Future 2017: M\u00fascul en un xip per combatre la Distr\u00f2fia Muscular","description":"
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Aquest #GivingTuesday ajuda’ns a accelerar la recerca en tractaments personalitzats per la distr\u00f2fia muscular<\/h2>\n

** Actualitzaci\u00f3:<\/strong> El web Faster Future<\/a> ja est\u00e0 obert per a donacions**<\/p>\n

Faster\u00a0Future\u00a0\u00e9s el nou programa de l’IBEC\u00a0amb el qual, mitjan\u00e7ant iniciatives de finan\u00e7ament col\u00b7lectiu, busquem accelerar i portar a la pr\u00e0ctica cl\u00ednica determinats projectes que ja es troben en una fase avan\u00e7ada de recerca.<\/p>\n

Aquest #GivingTuesday\u00a0pots ajudar-nos a accelerar la creaci\u00f3 d’una plataforma \u201cm\u00fascul en un xip\u201d per a l’avaluaci\u00f3 d’estrat\u00e8gies terap\u00e8utiques per a pacients afectats per la distr\u00f2fia muscular\u00a0miot\u00f2nica.<\/p>\n

La Distr\u00f2fia Muscular\u00a0miot\u00f2nica\u00a0DM1 o malaltia de\u00a0Steinert\u00a0\u00e9s la distr\u00f2fia muscular m\u00e9s severa i freq\u00fcent en adults, afectant a 1 de cada 8.000 adults a Espanya. \u00c9s una malaltia neuromuscular heredit\u00e0ria considerada rara, d’incapacitaci\u00f3 progressiva, que avui afecta a 50.000 persones a Espanya. El risc d’hereteu la malaltia \u00e9s del 50% quan un dels dos progenitors est\u00e0 afectat.<\/p>\n

En l’actualitat no existeix cura per a la Distr\u00f2fia Muscular, el seu tractament es basa en l’alleujament simptom\u00e0tic per millorar la qualitat de vida dels pacients.<\/p>\n

Gran part de la recerca desenvolupada a l’IBEC es focalitza en la creaci\u00f3 de noves solucions de medicina personalitzada. Amb aquest projecte, liderat pel Dr. Javier Ram\u00f3n, tindrem la possibilitat d’obtenir, en un curt per\u00edode de temps, un dispositiu (m\u00fascul en un xip) que ens permetr\u00e0 valorar l’efic\u00e0cia dels f\u00e0rmacs relacionats amb la distr\u00f2fia muscular de manera personalitzada, sense l’\u00fas d’animals, mitjan\u00e7ant el cultiu de c\u00e8l\u00b7lules musculars del propi pacient.<\/p>\n

Amb aquesta campanya #GivingTuesday\u00a0volem recaptar els 25,000 \u20ac necessaris per dur a terme les \u00faltimes fases del projecte: dotar al teixit muscular de\u00a0biosensores, validar la\u00a0plataforma i fer proves amb f\u00e0rmacs.<\/strong><\/p>\n

En l’actualitat no existeix cap projecte d’aquestes caracter\u00edstiques. A partir de la xifra m\u00ednima de 18.000\u20ac, aquestes \u00faltimes fases del projecte podrien engegar-se al gener de 2018 i, a la fi de 2019, es podria fabricar un primer prototip funcional d’aquest dispositiu. Amb l’ajuda de tots, podrem accelerar l’arribada d’aquesta soluci\u00f3 personalitzada a la pr\u00e0ctica cl\u00ednica.<\/p>\n

Aquest #GivingTuesday, ajuda’ns a fer realitat la medicina del futur!<\/strong><\/p>","excerpt":"

Este #GivingTuesday ay\u00fadanos a acelerar una investigaci\u00f3n cient\u00edfica sobre enfermedad neuromuscular <\/p>","slug":"faster-future-2017-musculo-en-un-chip-para-combatir-la-distrofia-muscular-2","image":false,"all_day":true,"start_date":"2017-11-28 00:00:00","start_date_details":{"year":"2017","month":"11","day":"28","hour":"00","minutes":"00","seconds":"00"},"end_date":"2017-11-28 23:59:59","end_date_details":{"year":"2017","month":"11","day":"28","hour":"23","minutes":"59","seconds":"59"},"utc_start_date":"2017-11-27 23:00:00","utc_start_date_details":{"year":"2017","month":"11","day":"27","hour":"23","minutes":"00","seconds":"00"},"utc_end_date":"2017-11-28 22:59:59","utc_end_date_details":{"year":"2017","month":"11","day":"28","hour":"22","minutes":"59","seconds":"59"},"timezone":"Europe\/Madrid","timezone_abbr":"CET","cost":"","cost_details":{"currency_symbol":"","currency_code":"","currency_position":"prefix","values":[]},"website":"","show_map":false,"show_map_link":false,"hide_from_listings":false,"sticky":false,"featured":false,"categories":[{"name":"Other","slug":"other-ca","term_group":0,"term_taxonomy_id":359,"taxonomy":"tribe_events_cat","description":"","parent":0,"count":23,"filter":"raw","term_order":"0","id":356,"urls":{"self":"https:\/\/ibecbarcelona.eu\/ca\/wp-json\/tribe\/events\/v1\/categories\/356","collection":"https:\/\/ibecbarcelona.eu\/ca\/wp-json\/tribe\/events\/v1\/categories"}}],"tags":[],"venue":[],"organizer":[],"custom_fields":[],"json_ld":{"@context":"http:\/\/schema.org","@type":"Event","name":"Faster Future 2017: M\u00fascul en un xip per combatre la Distr\u00f2fia Muscular","description":"<p>Este #GivingTuesday ay\u00fadanos a acelerar una investigaci\u00f3n cient\u00edfica sobre enfermedad neuromuscular <\/p>\\n","url":"https:\/\/ibecbarcelona.eu\/ca\/event\/faster-future-2017-musculo-en-un-chip-para-combatir-la-distrofia-muscular-2\/","eventAttendanceMode":"https:\/\/schema.org\/OfflineEventAttendanceMode","eventStatus":"https:\/\/schema.org\/EventScheduled","startDate":"2017-11-28T00:00:00+01:00","endDate":"2017-11-28T23:59:59+01:00","performer":"Organization"}}