{"id":122896,"date":"2025-01-16T11:58:32","date_gmt":"2025-01-16T10:58:32","guid":{"rendered":"https:\/\/ibecbarcelona.eu\/event\/workshop-1-net-rare-advancements-in-personalized-therapies-for-rare-diseases\/"},"modified":"2025-01-16T12:20:11","modified_gmt":"2025-01-16T11:20:11","slug":"workshop-1-net-rare-advancements-in-personalized-therapies-for-rare-diseases","status":"publish","type":"tribe_events","link":"https:\/\/ibecbarcelona.eu\/ca\/event\/workshop-1-net-rare-advancements-in-personalized-therapies-for-rare-diseases\/","title":{"rendered":"Workshop 1 NET-RARE: Advancements in Personalized Therapies for Rare Diseases"},"content":{"rendered":"<p>In this first workshop, we will explore how various IBEC groups and external researchers are using new technologies to develop personalized therapies for rare diseases. The opening seminar features Adriana Gonzalez from IBEC\u2019s \u201cMolecular Imaging for Precision Medicine\u201d group. She will explain how the group studies myotonic dystrophy type I, a rare muscular disease, using nuclear magnetic resonance techniques. Next, Silvia Muro from IBEC\u2019s \u201cTargeted Therapeutics and Nanodevices\u201d group will present recent progress in using targeted nanotechnology to deliver drugs for treating genetic lysosomal disorders. We are also pleased to welcome Frances Platt, professor of Biochemistry and Pharmacology, Department of Pharmacology, University of Oxford (UK). Her group studies fundamental disease mechanisms in lysosomal disorders to identify novel clinical interventions strategies. They use small molecule drugs to target unique steps in the pathogenic cascade and test them as mono-therapies or in combination with other therapies. After a networking break, Belen Perez Due\u00f1as from VHIR\u2019s \u201cTherapeutics and Innovations in Neuropediatrics\u201d group will describe her team\u2019s efforts to address rare neuromuscular disorders through molecular diagnostics and personalized genetic therapies. Finally, Eduard Torrents Serra, leader of IBEC\u2019s \u201cBacterial Infections: Antimicrobial Therapies\u201d group, will talk about his research on antimicrobial treatments for cystic fibrosis.<\/p>\n<h5><strong>Scheduled Program:\u00a0<\/strong><\/h5>\n<p><strong>09.30-09.40:\u00a0<\/strong>Welcome and short introduction to the workshop<\/p>\n<p><strong>09.40-10.10:\u00a0<\/strong>Silvia Blanco, IBEC group \u201cMolecular Imaging for Precision Medicine\u201d<\/p>\n<p><strong>10.10-10.40:\u00a0<\/strong>Silvia Muro, IBEC group \u201cTargeted therapeutics and nanodevices\u201d<\/p>\n<p><strong>10.40-11.30:<\/strong>\u00a0International invited speaker:\u00a0<span style=\"color: #000000;\"><a style=\"color: #000000;\" href=\"https:\/\/www.pharm.ox.ac.uk\/team\/frances-platt\" target=\"_blank\" rel=\"noreferrer noopener\"><span style=\"color: #3366ff;\">Frances Platt<\/span><\/a><\/span>, professor of Biochemistry and Pharmacology, Department of Pharmacology, University of Oxford (UK).<\/p>\n<p><strong>11.30-12.00: Coffee Break and Networking<\/strong><\/p>\n<p><strong>12.00-12.30:\u00a0<\/strong>National invited speaker:\u00a0<span style=\"color: #3366ff;\"><a style=\"color: #3366ff;\" href=\"https:\/\/vhir.vallhebron.com\/es\/profesionales\/belen-perez-duenas\" target=\"_blank\" rel=\"noreferrer noopener\">Belen Perez Due\u00f1as<\/a><\/span>\u00a0from the VHIR group \u201cTherapeutics and innovations in neuropediatrics\u201d.<\/p>\n<p><strong>12.30-13.00:<\/strong>\u00a0Eduard Torrents Serra, IBEC group \u201cBacterial Infections: Antimicrobial Therapies\u201d<\/p>\n<p><strong>13.00-13.10:\u00a0<\/strong>Remarks and Closing<\/p>\n","protected":false},"excerpt":{"rendered":"<p>In this first workshop, we will explore how various IBEC groups and external researchers are using new technologies to develop personalized therapies for rare diseases. The opening seminar features Adriana &#8230; <a title=\"Workshop 1 NET-RARE: Advancements in Personalized Therapies for Rare Diseases\" class=\"read-more\" href=\"https:\/\/ibecbarcelona.eu\/ca\/event\/workshop-1-net-rare-advancements-in-personalized-therapies-for-rare-diseases\/\" aria-label=\"More on Workshop 1 NET-RARE: Advancements in Personalized Therapies for Rare Diseases\">Read more<\/a><\/p>\n","protected":false},"author":24,"featured_media":0,"template":"","meta":{"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[358],"class_list":["post-122896","tribe_events","type-tribe_events","status-publish","hentry","tribe_events_cat-symposium-ca","cat_symposium-ca"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Workshop 1 NET-RARE: Advancements in Personalized Therapies for Rare Diseases - Institute for Bioengineering of Catalonia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ibecbarcelona.eu\/ca\/event\/workshop-1-net-rare-advancements-in-personalized-therapies-for-rare-diseases\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Workshop 1 NET-RARE: Advancements in Personalized Therapies for Rare Diseases - Institute for Bioengineering of Catalonia\" \/>\n<meta property=\"og:description\" content=\"In this first workshop, we will explore how various IBEC groups and external researchers are using new technologies to develop personalized therapies for rare diseases. 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