{"id":95901,"date":"2016-03-17T10:53:06","date_gmt":"2016-03-17T09:53:06","guid":{"rendered":"http:\/\/ibecbarcelona.eu\/?post_type=tribe_events&p=21919"},"modified":"2016-03-17T10:53:06","modified_gmt":"2016-03-17T09:53:06","slug":"el-present-i-el-futur-de-la-fibrosi-quistica-2","status":"publish","type":"tribe_events","link":"https:\/\/ibecbarcelona.eu\/ca\/event\/el-present-i-el-futur-de-la-fibrosi-quistica-2\/","title":{"rendered":"El present i el futur de la Fibrosi Qu\u00edstica"},"content":{"rendered":"
\n

\"\"<\/p>\n

El present i el futur de la Fibrosi Qu\u00edstica<\/h2>\n
27\/04\/16<\/address>\n

El dimecres 27 d’abril, amb motiu del dia Nacional de la Fibrosi Qu\u00edstica, l’IBEC organitza la jornada divulgativa\u00a0“El present i el futur de la Fibrosi Qu\u00edstica”, amb l’objectiu de conscienciar a la societat sobre la incid\u00e8ncia d\u2019aquesta malaltia, informar dels aspectes cl\u00ednics i donar a con\u00e8ixer els resultats que s\u2019estan assolint en el camp de la recerca.<\/strong><\/p>\n

La Fibrosi Qu\u00edstica \u00e9s una malaltia gen\u00e8tica i heredit\u00e0ria que est\u00e0 present des de la concepci\u00f3. Es calcula que cada any neixen a Catalunya uns 14 nens afectats per aquesta malaltia, el que la converteix en la malaltia gen\u00e8tica heredit\u00e0ria m\u00e9s freq\u00fcent. Les estad\u00edstiques permeten afirmar que un de cada 25 individus \u00e9s portador del gen de la malaltia, el que significa, per exemple, que a Espanya hi ha d’1,5 a 2 milions de persones portadores del gen de la Fibrosi Qu\u00edstica.<\/p>\n

Gr\u00e0cies a l’estudi gen\u00e8tic de la Fibrosi Qu\u00edstica, s’ha experimentat grans aven\u00e7os en els \u00faltims anys que han perm\u00e8s desenvolupar la investigaci\u00f3 en diferents \u00e0mbits. La jornada est\u00e0 organitzada en estreta col\u00b7laboraci\u00f3 amb l\u2019Associaci\u00f3 Catalana de Fibrosi Qu\u00edstica (ACFQ)<\/a>, que va n\u00e9ixer amb l\u2019objectiu de lluitar per millorar la qualitat de vida dels malalts i de les seves fam\u00edlies, i t\u00e9 el suport de Pessics de Ci\u00e8ncia<\/a>, projecte dedicat a fomentar la ci\u00e8ncia fent-la propera, atractiva i entenedora.<\/p>\n

L’esdeveniment s’articular\u00e0 en dues activitats; una xerrada divulgativa per a estudiants de batxillerat, i una taula rodona, \u201cPresent i futur de la Fibrosi Qu\u00edstica: pacients, cl\u00ednica i recerca\u201d, dirigida al p\u00fablic general que comptar\u00e0 amb la pres\u00e8ncia de diferents personalitats, experts cl\u00ednics, investigadors i representants de pacients.<\/p>\n

10:00 – 13:00:<\/strong> Xerrada divulgativa dirigida a alumnes de secund\u00e0ria
\n19:00 – 20:30:<\/strong> Taula rodona “Present i futur de la Fibrosi Qu\u00edstica: pacients, cl\u00ednica i recerca”<\/p>\n

Registration: http:\/\/ibecbarcelona.eu\/events\/Fibrosis-Quistica\/registro.html<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Una xerrada divulgativa per a estudiants de batxillerat \/ una taula rodona<\/p>\n","protected":false},"author":4,"featured_media":0,"template":"","meta":{"_tribe_events_status":"","_tribe_events_status_reason":"","footnotes":""},"tags":[],"tribe_events_cat":[380],"class_list":["post-95901","tribe_events","type-tribe_events","status-publish","hentry","tribe_events_cat-joint-event-with-other-entity","cat_joint-event-with-other-entity"],"yoast_head":"\nEl present i el futur de la Fibrosi Qu\u00edstica - Institute for Bioengineering of Catalonia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ibecbarcelona.eu\/event\/el-present-i-el-futur-de-la-fibrosi-quistica-2\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El present i el futur de la Fibrosi Qu\u00edstica - Institute for Bioengineering of Catalonia\" \/>\n<meta property=\"og:description\" content=\"Una xerrada divulgativa per a estudiants de batxillerat \/ una taula rodona\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ibecbarcelona.eu\/event\/el-present-i-el-futur-de-la-fibrosi-quistica-2\/\" \/>\n<meta property=\"og:site_name\" content=\"Institute for Bioengineering of Catalonia\" \/>\n<meta property=\"og:image\" content=\"http:\/\/ibecbarcelona.eu\/events\/images\/headers\/fq_head_web.jpg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Temps estimat de lectura\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minuts\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/ibecbarcelona.eu\\\/event\\\/el-present-i-el-futur-de-la-fibrosi-quistica-2\\\/\",\"url\":\"https:\\\/\\\/ibecbarcelona.eu\\\/event\\\/el-present-i-el-futur-de-la-fibrosi-quistica-2\\\/\",\"name\":\"El present i el futur de la Fibrosi Qu\u00edstica - 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