
{"id":109855,"date":"2023-05-26T11:41:50","date_gmt":"2023-05-26T09:41:50","guid":{"rendered":"https:\/\/ibecbarcelona.eu\/?p=109855"},"modified":"2023-07-13T11:46:03","modified_gmt":"2023-07-13T09:46:03","slug":"fighting-the-rare-es-el-documental-que-defensa-la-investigacio-en-malalties-rares","status":"publish","type":"post","link":"https:\/\/ibecbarcelona.eu\/es\/fighting-the-rare-es-el-documental-que-defensa-la-investigacio-en-malalties-rares\/","title":{"rendered":"\u00abFighting the Rare\u00bb es el documental que defiende la investigaci\u00f3n en enfermedades raras"},"content":{"rendered":"\n<p>Concebido por Jordi Duran, investigador del IBEC y del\u00a0IQS, el documental \u201cFighting\u00a0the\u00a0rare\u00a0\u2013 Luchando en minor\u00eda\u201d explica c\u00f3mo se llev\u00f3 a cabo una investigaci\u00f3n cient\u00edfica sobre la enfermedad\u00a0minoritaria\u00a0llamada enfermedad de\u00a0Lafora. El documental muestra c\u00f3mo es la dura la evoluci\u00f3n de esta enfermedad hasta la muerte de los pacientes. Hasta hace pocos a\u00f1os no se conoc\u00eda la causa, y gracias a la investigaci\u00f3n se pudo identificar, abriendo as\u00ed el camino a encontrar un tratamiento. Se puede ver el documental en su <a href=\"https:\/\/www.fightingtherare.com\/lluitant-en-minoria-ca\">pagina web<\/a>.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"551\" height=\"232\" data-src=\"https:\/\/ibecbarcelona.eu\/wp-content\/uploads\/2023\/07\/Captura-de-pantalla-2023-07-13-112825.png\" alt=\"\" class=\"wp-image-109850 lazyload\" data-srcset=\"https:\/\/ibecbarcelona.eu\/wp-content\/uploads\/2023\/07\/Captura-de-pantalla-2023-07-13-112825.png 551w, https:\/\/ibecbarcelona.eu\/wp-content\/uploads\/2023\/07\/Captura-de-pantalla-2023-07-13-112825-300x126.png 300w\" data-sizes=\"(max-width: 551px) 100vw, 551px\" src=\"data:image\/svg+xml;base64,PHN2ZyB3aWR0aD0iMSIgaGVpZ2h0PSIxIiB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciPjwvc3ZnPg==\" style=\"--smush-placeholder-width: 551px; --smush-placeholder-aspect-ratio: 551\/232;\" \/><\/figure>\n\n\n\n<p><\/p>\n\n\n\n<p>Puedes leer la noticia a <a href=\"https:\/\/www.lavanguardia.com\/vida\/20230526\/8998086\/documental-defiende-investigacion-hallar-tratamiento-enfermedades-raras.html\">La Vanguardia<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Concebido por Jordi Duran, investigador del IBEC y del\u00a0IQS, el documental \u201cFighting\u00a0the\u00a0rare\u00a0\u2013 Luchando en minor\u00eda\u201d explica c\u00f3mo se llev\u00f3 a cabo una investigaci\u00f3n cient\u00edfica sobre la enfermedad\u00a0minoritaria\u00a0llamada enfermedad de\u00a0Lafora. El &#8230; <a title=\"\u00abFighting the Rare\u00bb es el documental que defiende la investigaci\u00f3n en enfermedades raras\" class=\"read-more\" href=\"https:\/\/ibecbarcelona.eu\/es\/fighting-the-rare-es-el-documental-que-defensa-la-investigacio-en-malalties-rares\/\" aria-label=\"More on \u00abFighting the Rare\u00bb es el documental que defiende la investigaci\u00f3n en enfermedades raras\">Read more<\/a><\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[95],"tags":[1945],"post_formats":[],"class_list":["post-109855","post","type-post","status-publish","format-standard","hentry","category-ibec-en-los-medios","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>&quot;Fighting the Rare&quot; es el documental que defiende la investigaci\u00f3n en enfermedades raras - Institute for Bioengineering of Catalonia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ibecbarcelona.eu\/es\/fighting-the-rare-es-el-documental-que-defensa-la-investigacio-en-malalties-rares\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"&quot;Fighting the Rare&quot; es el documental que defiende la investigaci\u00f3n en enfermedades raras - Institute for Bioengineering of Catalonia\" \/>\n<meta property=\"og:description\" content=\"Concebido por Jordi Duran, investigador del IBEC y del\u00a0IQS, el documental \u201cFighting\u00a0the\u00a0rare\u00a0\u2013 Luchando en minor\u00eda\u201d explica c\u00f3mo se llev\u00f3 a cabo una investigaci\u00f3n cient\u00edfica sobre la enfermedad\u00a0minoritaria\u00a0llamada enfermedad de\u00a0Lafora. El ... 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