FEDER
Joining forces with FEDER to collaborate on solutions for rare diseases
IBEC has signed a collaboration agreement with the Federación Española de Enfermedades Raras (FEDER), a non-profit organization that represents the three million people suffering from rare diseases throughout the country.
Rare diseases are those that affect fewer than 5 out of every 10,000 inhabitants. According to the WHO, there are about 7,000 such diseases affecting 7% of the world’s population, so altogether they affect a huge number of people – and they can appear at any stage of life. The agreement with IBEC will connect the institute with patients’ associations to develop projects together that have a direct application according to the needs of sufferers.